DEBRA Switzerland is the patient organisation for people living with Epidermolysis Bullosa (EB) since 1998. Epidermolysis bullosa (EB) is a congenital, currently incurable skin disease. Depending on its form and severity, EB is associated with severe limitations. Due to a genetic defect, a certain collagen is not produced by the body at all or only insufficiently. As a result, the individual skin layers do not hold together properly. The skin of people with EB is very vulnerable and even the slightest mechanical stress can lead to blistering and large, painful wounds.
The website is aimed at the approximately 200 people affected and their relatives in Switzerland. These are spread across all language regions in Switzerland. It is therefore important that the information is available in German, French and Italian.https://www.schmetterlingskinder.ch